P. O. Box 29422
Indianapolis, IN  46229
 
 (317) 876-0600
(800) 526-6618


info@indianaepilepsyfoundation.org

Not another moment lost to seizures

Epilepsy Information

ABOUT EPILEPSY

Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain. When a person has two or more seizures, they are considered to have epilepsy. For 70 percent of people with seizures and epilepsy, the cause of their condition is unknown. A seizure occurring without a clear cause is called idiopathic.

Seizures can last a few seconds to a few minutes. They can have many symptoms, from convulsions and loss of consciousness to some that are not always recognized as seizures by the person experiencing them or by health care professionals: blank staring, lip smacking, or jerking movements of arms and legs.

One in 10 adults will have a seizure sometime during their life. One percent of the population -- more than 3 million Americans -- are treated for epilepsy, most commonly with antiseizure medications.

Danny Did Foundation focuses on
Sudden Unexplained Death in Epilepsy (SUDEP)

Founded by Chicagoans Mike and Mariann Stanton in January 2010 after the death of their 4-year–old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures with two main goals in mind: (1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures, and (2) the mainstreaming of seizure detection and prediction devices that may assist in preventing deaths caused by seizures. 

The Danny Did Foundation views these devices as complementary to medicinal, surgical and dietary measures that are used to treat seizures.  For more information about SUDEP and this organization, go to http://www.dannydid.org/ 

You can also find the latest information about SUDEP from the National Epilepsy Foundation at http://www.epilepsyfoundation.org/sudep

TRAVEL ASSISTANCE

If you or a family member need financial assistance with travel to your neurologist, money may be available for you through the J. Kiffin Penry Travel Assistance Fund.  Please click on the link to see the forms that you will need to print out, complete and return to EFI.  Alll money is on a reimbursable basis.

RESEARCH NEWS

As part of our mission statement, the Epilepsy Foundation of Indiana supports both local and national research efforts to control and cure epilepsy.

To see the latest information on research initiatives sponsored by the National Epilepsy Foundation, 
click here. 


FIRST AID FOR SEIZURES

First aid for seizures involves responding in ways that can keep the person safe until the seizure stops by itself.

Here are a few things you can do to help someone who is having a
generalized tonic-clonic (grand mal) seizure:

-- Keep calm and reassure other people who may be nearby.
-- Prevent injury by clearing the area around the person of anything hard or sharp.
-- Ease the person to the floor and put something soft and flat, like a folded jacket, under his head.
-- Remove eyeglasses and loosen ties or anything around the neck that may make breathing difficult.
-- Time the seizure with your watch. If the seizure continues for longer than five minutes without signs of slowing down or if a person has trouble breathing afterwards, appears to be injured, in pain, or recovery is unusual in some way, call 911.
-- Do not hold the person down or try to stop his movements.
-- Contrary to popular belief, it is not true that a person having a seizure can swallow his tongue. Do not put anything in the person’s mouth. Efforts to hold the tongue down can injure the teeth or jaw.
-- Turn the person gently onto one side. This will help keep the airway clear.
-- Don't attempt artificial respiration except in the unlikely event that a person does not start breathing again after the seizure has stopped.
-- Stay with the person until the seizure ends naturally and he is fully awake.
-- Do not offer the person water or food until fully alert
Be friendly and reassuring as consciousness returns.
-- Offer to call a taxi, friend or relative to help the person get home if he seems confused or unable to get home without help.

To help someone who is having a seizure that appears as blank staring, loss of awareness, and/or involuntary blinking, chewing, or other facial movements.

-- Stay calm and speak reassuringly.
-- Guide him away from dangers.
-- Block access to hazards, but don’t restrain the person.
-- If he is agitated, stay a distance away, but close enough to protect him until full awareness has returned.


Consider a seizure an emergency and call 911 if any of the following occurs:

-- The seizure lasts longer than five minutes without signs of slowing down or if a person has trouble breathing afterwards, appears to be in pain or recovery is unusual in some way.
-- The person has another seizure soon after the first one.
-- The person cannot be awakened after the seizure activity has stopped.
-- The person became injured during the seizure.
-- The person becomes aggressive.
-- The seizure occurs in water.
-- The person has a health condition like diabetes or heart disease or is pregnant.

EPILEPSY IN THE NEWS

Here are some news article links about epilepsy that you might find of interest:

Implanted device curbs Valpo man's seizures

Carmel girl, 13, has part of brain removed to fight epilepsy

Riley stays a step ahead

Epilepsy patients help decode the brain's hidden signals

Strict diet helps halt seizures for epileptic child

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