P. O. Box 29422
Indianapolis, IN  46229
 
 (317) 876-0600
(800) 526-6618


info@indianaepilepsyfoundation.org

Not another moment lost to seizures


Our Mission Statement
The Epilepsy Foundation of Indiana leads the fight to stop seizures,
find a cure and overcome the challenges created by epilepsy.

Gala raises money for seizure dog assistance
     


We are happy to announce that proceeds from our 2014 fundraising Gala were recently shared with a service animal organization that will provide Dagan Everman of Coatesville with a seizure dog later this year, giving him more independence at home and at school. Dagan's family worked very hard to raise part of the funds that were needed, then applied to EFI for help with the rest. A special presentation was made to the Everman family at the September meeting of the Indianapolis Epilepsy Support Group by members of the EFI board of directors, led by Sandy Pollard. We look forward to meeting his dog soon!

 2014 Gala Award Honorees
  Along with dinner, dancing and a silent auction, the Gala also featured awards for Lifetime Achievement, Medical Excellence, Distinguished Service, Community Outreach and Inspirational Youth.
Here are the 2014 Gala award winners, as seen left to right:

Medical Excellence – Dr. James Pappas, pediatric neurologist and medical director of child neurology at Peyton Manning Children’s Hospital where he started the ketogenic diet program three years ago.
Lifetime Achievement Award – Dr. Robert Worth, retired neurosurgeon who helped develop a comprehensive surgical epilepsy program with Dr. Omkar Markand at IU Medical Center.
Inspirational Youth – Michaela Long, high school student who has lived with epilepsy for the past 3 years. In that short time, she has helped spread epilepsy awareness by designing and selling T-shirts, speaking out against bullying and encouraging others with seizure disorders to pursue their dreams.
Community Outreach
– Justin Powers, EFI volunteer who has worked with Studio E participants and the Indianapolis Epilepsy Support Group. Justin, who has lived with epilepsy since age 5, is currently a college student and hopes to work with disabled children one day.
Distinguished Service – Officer Chris Heleine, campus police officer at Indiana State University. His heroic actions saved the life of a person with epilepsy who suffered a seizure while driving, and was subsequently trapped in a car fire.
 
 Thanks to the many sponsors and friends of the foundation that made this year's gala a "pawsitive" experience for everyone involved! Special thanks to Mark Schmidt for his photography services.  See our gallery on Facebook here.

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Thank you to our 2014 Gala Sponsors!
St. Vincent Neuroscience Institute
IU Neuroscience Center
Franciscan St. Francis Health
Lundbeck
Cyberonics
Spine-Tek Neuromonitoring
Monarch Beverage Company

News & Notes

Find Studio E at the Spirit & Place F
estival -- A free session showing how the arts fuel the spirit will take place from 2 to 4 p.m. on Saturday, Nov. 15 at Castleton United Methodist Church, 7101 Shadeland Ave. in Indianapolis. Presenters include Art of the Soul, host of the 2014 Studio E art therapy program for children with epilepsy and their parents. 
See how Studio E touches the lives of those with epilepsy in the following video:



For more information about Studio E, go here.      

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A Change for the Better  
-- We are planning a new partnership with the
National Epilepsy Foundation! Read all about it to see what it means for you. 


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Save the Date
 -- Our 3rd annual Gala will take place on Saturday, Feb. 28, 2015 at the Ritz Charles in Carmel.  Stay tuned for more details to come.

       
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Hoosiers attend Teens Speak Up/Public Policy Institute in D.C.


     This annual event brings together teens and their families living with epilepsy from around the country to learn about legislative issues affecting them and have the opportunity to share their stories with their congressional representatives.
     In attendance from Indiana this year were Jeff & Karen Barber with their daughter Jada, as well as Marc Parker, our EFI Affiliate Advocacy Leader.
     A highlight of the trip was the chance to sit down and talk with U.S. Rep. Jackie Walorski of South Bend (pictured above).  For more photos of this event, visit our Teens Speak Up photo album on Facebook.
      
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JWM Neurology enrolling candidates in adult, pediatric clinical trials -- These research studies give patients the opportunity to try out new medications at no cost while receiving a high standard of care.
     The adult trial is for patients with partial onset seizures. For more information, contact Tammy Root at (317) 537-6088, ext. 1250 or troot@jwmneuro.com. 
The pediatric trial for partial onset seizures is for children ages 1 month to 16 years.  There is also a pediatric trial for children on inducer medications and this is open to ages 2 through 6.  For more information about the pediatric trials, contact Kristi Mann at (317) 806-6965 or kmann@jwmneuro.com.
    
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A Success Story
--
Here's an example of how the determination to overcome epilepsy challenges can be an uplifting experience for everyone who gets involved.  Check out this Indiana success story that is featured on the national Epilepsy Foundation website.

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New Public Service Announcement -- A 30-second PSA to help create awareness about the Epilepsy Foundation of Indiana has been created by Katie Strauss, a Media Arts and Science graduate of IUPUI.



The video features members of the Indianapolis Epilepsy Support Group who graciously agreed to be part of this project.
 
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