Not another moment lost to seizures
Ask Congress to Support Research and Innovation -- Congress is considering bipartisan legislation, the 21st Century Cures Act (HR 6), which would accelerate the discovery, development, and delivery of lifesaving medical treatments by bringing the nation’s health care innovation infrastructure into the 21st Century.
Ask your Representative to cosponsor 21st Century Cures so it can get to the House floor for a vote!
HR 6 would authorize $10 billion over a period of five years to establish an innovation fund at the National Institutes of Health (NIH), and propose increases in overall NIH funding. The bill would also further incorporate the patient perspective into the drug development regulatory review process at Food and Drug Administration (FDA); modernize clinical trials; remove barriers to greater research coordination; and create incentives for developing therapies for rare conditions.
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Caregiver Survey Opportunity -- Dr. Sandra Helmers of the Emory University School of Medicine and her team are conducting a survey of people who care for someone with epilepsy to understand their experiences and identify the needs of the epilepsy community.
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Epilepsy Foundation of America
Speak Up Indiana!
Danny Did Foundation
Center for Courageous Kids camp programs
Hope's Way, a recreation center for kids with special needs
Jeanne A. Carpenter Legal Defense Fund
UCB Family Epilepsy Scholarship Program
Indiana Civil Rights Commission
IndyGo bus system
We Connect Now, a website for college students with disabilities