3901 W. 86th St., Suite 380
Indianapolis, IN 46268
 
 (317) 876-0606
(800) 526-6618


info@indianaepilepsyfoundation.org

Not another moment lost to seizures


 Sat., May 24, 2014     Kamm Island Park         Mishawaka, IN
 Sat., June 21, 2014  Ft. Harrison State Park Indianapolis IN

Click on Mishawaka or Indianapolis to register for a 5K walk/run to benefit epilepsy!

Our Mission Statement

The Epilepsy Foundation of Indiana leads the fight to stop seizures,
find a cure and overcome the challenges created by epilepsy.

Gala raises money for seizure dog assistance

     Are you interested in acquiring a specially trained dog to assist you or someone you know who suffers from seizures?  If so, the Epilepsy Foundation of Indiana is here to help!
     As the result of our 2014 
fundraising Gala, we will be able to supplement the cost of a seizure alert or seizure assistance dog this year for one or more deserving individuals with epilepsy.
     In order to qualify for this program, you must be a resident of Indiana and be approved for a seizure dog by a qualified service animal organization. The organiza-tion can be located anywhere in the United States.
     Please note that EFI can only provide part of the cost related to a seizure dog and that all money will be awarded directly to the service dog organization on behalf of the applicant. Exact amounts will vary based on each situation.

So, how do you get started?
          Kate & Becky Dolan brought their
                   seizure dog, Oscar, to the Gala.

STEP ONE:  Contact an organization that trains seizure dogs to find out if you are a good candidate for a service animal.  Here is a partial list of organizations to get you started:

Midwest Assistance Dogs, Inc., South Bend, IN

Northern Indiana Service Dogs, Plymouth, IN

Medical Mutts, Indianapolis, IN

4 Paws for Ability, Inc., Xenia, OH

Paws With a Cause, Troy, MI

STEP TWO:  Once you have been approved by the service dog organization, ask them to write a letter of recommendation for you.

STEP THREE:  Send your request for a dog via email to Sandy Pollard
at skppy72@gmail.com and attach the letter of recommendation.

STEP FOUR:  We will send you a form and other details needed to complete your application for a seizure dog scholarship.

     We are very excited about being able to offer this program and hope it can continue to be funded for many years to come.  If you have any questions, please contact Sandy Pollard 

 2014 Gala Award Honorees
  Along with dinner, dancing and a silent auction, the Gala also featured awards for Lifetime Achievement, Medical Excellence, Distinguished Service, Community Outreach and Inspirational Youth.
Here are the 2014 Gala award winners, as seen left to right:

Medical Excellence – Dr. James Pappas, pediatric neurologist and medical director of child neurology at Peyton Manning Children’s Hospital where he started the ketogenic diet program three years ago.
Lifetime Achievement Award – Dr. Robert Worth, retired neurosurgeon who helped develop a comprehensive surgical epilepsy program with Dr. Omkar Markand at IU Medical Center.
Inspirational Youth – Michaela Long, high school student who has lived with epilepsy for the past 3 years. In that short time, she has helped spread epilepsy awareness by designing and selling T-shirts, speaking out against bullying and encouraging others with seizure disorders to pursue their dreams.
Community Outreach
– Justin Powers, EFI volunteer who has worked with Studio E participants and the Indianapolis Epilepsy Support Group. Justin, who has lived with epilepsy since age 5, is currently a college student and hopes to work with disabled children one day.
Distinguished Service – Officer Chris Heleine, campus police officer at Indiana State University. His heroic actions saved the life of a person with epilepsy who suffered a seizure while driving, and was subsequently trapped in a car fire.
 
 Thanks to the many sponsors and friends of the foundation that made this year's gala a "pawsitive" experience for everyone involved! Special thanks to Mark Schmidt for his photography services.  See our gallery on Facebook here.

 __________________________________________________________
Thank you to our 2014 Gala Sponsors!
St. Vincent Neuroscience Institute
IU Neuroscience Center
Franciscan St. Francis Health
Lundbeck
Cyberonics
Spine-Tek Neuromonitoring
Monarch Beverage Company

News & Notes


Studio E returns to Indianapolis -- Do you know a child with epilepsy between the ages of 7 and 17 who would like to express themselves through art? Find out how to enroll for this free summer program before the May 21, 2014 deadline!

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Blast From the Past will benefit the future
-- A special Charity Car Show will take place Saturday, May 17 at Active Day, 6620 Parkdale Place, Suite R, Indianapolis from 8 a.m. to 2 p.m. All proceeds will benefit the Alzheimer's Association and Epilepsy Foundation of Indiana. This event will include music, food, door prizes, a raffle and a lot of customized cars! For more info or to register your car, contact David Williamson at dwilliamson@activeday.com

       
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Epilepsy scholarship program now open -- The UCB Family Epilepsy Scholarship Program is taking applications online for the 2014-15 school year and will be awarding 30 one-time scholarships of up to $5000. 
People with epilepsy, their family members and caregivers are all eligible to apply. Deadline is May 5, 2014.

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Hoosiers attend Teens Speak Up/Public Policy Institute in D.C.

     This annual event brings together teens and their families living with epilepsy from around the country to learn about legislative issues affecting them and have the opportunity to share their stories with their congressional representatives.
     In attendance from Indiana this year were Jeff & Karen Barber with their daughter Jada, as well as Marc Parker, our EFI Affiliate Advocacy Leader.
     A highlight of the trip was the chance to sit down and talk with U.S. Rep. Jackie Walorski of South Bend (pictured above).  For more photos of this event, visit our Teens Speak Up photo album on Facebook.
      
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JWM Neurology enrolling candidates in adult, pediatric clinical trials -- These research studies give patients the opportunity to try out new medications at no cost while receiving a high standard of care.
     The adult trial is for patients with partial onset seizures. For more information, contact Tammy Root at (317) 537-6088, ext. 1250 or troot@jwmneuro.com. 
The pediatric trial for partial onset seizures is for children ages 1 month to 16 years.  There is also a pediatric trial for children on inducer medications and this is open to ages 2 through 6.  For more information about the pediatric trials, contact Kristi Mann at (317) 806-6965 or kmann@jwmneuro.com.
    
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A Success Story
--
Here's an example of how the determination to overcome epilepsy challenges can be an uplifting experience for everyone who gets involved.  Check out this Indiana success story that is featured on the national Epilepsy Foundation website.

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New Public Service Announcement -- A 30-second PSA to help create awareness about the Epilepsy Foundation of Indiana has been created by Katie Strauss, a Media Arts and Science graduate of IUPUI.



The video features members of the Indianapolis Epilepsy Support Group who graciously agreed to be part of this project.
 
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