3901 W. 86th St., Suite 380
Indianapolis, IN 46268
 
 (317) 876-0606
(800) 526-6618


info@indianaepilepsyfoundation.org

Not another moment lost to seizures

 

Our Mission Statement

The Epilepsy Foundation of Indiana leads the fight to stop seizures,
find a cure and overcome the challenges created by epilepsy.

Gala raises money for seizure dog assistance
     
     As the result of our 2014 
fundraising Gala, we will be able to supplement the cost of a seizure alert or seizure assistance dog this year for one or more deserving individuals with epilepsy.
     In order to qualify for this program, you must be a resident of Indiana and be approved for a seizure dog by a qualified service animal organization. The organiza-tion can be located anywhere in the United States.
     Please note that EFI can only provide part of the cost related to a seizure dog and that all money will be awarded directly to the service dog organization on behalf of the applicant. Exact amounts will vary based on each situation; travel costs are not included.

          Kate & Becky Dolan brought their
                   seizure dog, Oscar, to the Gala.

The application deadline for this program ended on July 1, 2014. Stay tuned for more information about our seizure dog recipient(s) as it becomes available.

 2014 Gala Award Honorees
  Along with dinner, dancing and a silent auction, the Gala also featured awards for Lifetime Achievement, Medical Excellence, Distinguished Service, Community Outreach and Inspirational Youth.
Here are the 2014 Gala award winners, as seen left to right:

Medical Excellence – Dr. James Pappas, pediatric neurologist and medical director of child neurology at Peyton Manning Children’s Hospital where he started the ketogenic diet program three years ago.
Lifetime Achievement Award – Dr. Robert Worth, retired neurosurgeon who helped develop a comprehensive surgical epilepsy program with Dr. Omkar Markand at IU Medical Center.
Inspirational Youth – Michaela Long, high school student who has lived with epilepsy for the past 3 years. In that short time, she has helped spread epilepsy awareness by designing and selling T-shirts, speaking out against bullying and encouraging others with seizure disorders to pursue their dreams.
Community Outreach
– Justin Powers, EFI volunteer who has worked with Studio E participants and the Indianapolis Epilepsy Support Group. Justin, who has lived with epilepsy since age 5, is currently a college student and hopes to work with disabled children one day.
Distinguished Service – Officer Chris Heleine, campus police officer at Indiana State University. His heroic actions saved the life of a person with epilepsy who suffered a seizure while driving, and was subsequently trapped in a car fire.
 
 Thanks to the many sponsors and friends of the foundation that made this year's gala a "pawsitive" experience for everyone involved! Special thanks to Mark Schmidt for his photography services.  See our gallery on Facebook here.

 __________________________________________________________
Thank you to our 2014 Gala Sponsors!
St. Vincent Neuroscience Institute
IU Neuroscience Center
Franciscan St. Francis Health
Lundbeck
Cyberonics
Spine-Tek Neuromonitoring
Monarch Beverage Company

News & Notes

Free VNS Education Program -- Are you interested in learning more about VNS therapy? There will be a free patient education program on Tues., July 15, from 5 to 7 p.m. at the Central Library, 200 SE MLK Jr. Blvd., Evansville. Dr. David Robertson will be on hand to present information and answer questions. For more information, call Krystal at (800) 332-1375, ext. 2729. This event is sponsored by Cyberonics.

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Blast From the Past benefits the future
-- A big thanks to David Williamson and everyone at Active Day for hosting a special Charity Car Show on Saturday, May 17.Proceeds from the event were split between the Alzheimer's Association and Epilepsy Foundation of Indiana. The car show raised $400 for EFI programs and services to benefit people affected by epilepsy throughout Indiana.

       
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Hoosiers attend Teens Speak Up/Public Policy Institute in D.C.


     This annual event brings together teens and their families living with epilepsy from around the country to learn about legislative issues affecting them and have the opportunity to share their stories with their congressional representatives.
     In attendance from Indiana this year were Jeff & Karen Barber with their daughter Jada, as well as Marc Parker, our EFI Affiliate Advocacy Leader.
     A highlight of the trip was the chance to sit down and talk with U.S. Rep. Jackie Walorski of South Bend (pictured above).  For more photos of this event, visit our Teens Speak Up photo album on Facebook.
      
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JWM Neurology enrolling candidates in adult, pediatric clinical trials -- These research studies give patients the opportunity to try out new medications at no cost while receiving a high standard of care.
     The adult trial is for patients with partial onset seizures. For more information, contact Tammy Root at (317) 537-6088, ext. 1250 or troot@jwmneuro.com. 
The pediatric trial for partial onset seizures is for children ages 1 month to 16 years.  There is also a pediatric trial for children on inducer medications and this is open to ages 2 through 6.  For more information about the pediatric trials, contact Kristi Mann at (317) 806-6965 or kmann@jwmneuro.com.
    
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A Success Story
--
Here's an example of how the determination to overcome epilepsy challenges can be an uplifting experience for everyone who gets involved.  Check out this Indiana success story that is featured on the national Epilepsy Foundation website.

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New Public Service Announcement -- A 30-second PSA to help create awareness about the Epilepsy Foundation of Indiana has been created by Katie Strauss, a Media Arts and Science graduate of IUPUI.



The video features members of the Indianapolis Epilepsy Support Group who graciously agreed to be part of this project.
 
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